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CTG Online News
Thu, 11 Sep 2014 14:20:00 EST

A roadmap toward a SUNY-wide clinical integrated data repository

First stakeholder meeting

On Wednesday September 3, 2014 the Center for Technology in Government hosted the first stakeholder meeting that brought together industry, subject matter experts, researchers, university administration, and government practitioners to discuss the vision for a SUNY-wide clinical data resource. The meeting, funded through a planning grant award from the SUNY Network of Excellence, is the first of four to be held over the next year.
Meeting Group Photo
Meeting participants (Pictured Left to Right) Vince Delio, Natalie Helbig, Werner Ceusters, Kimberly Eck, Peter Winkelstein, Theresa Parto, Hao Wang, Jerry Sicard, Peter Hojczyk (Not Pictured: David Conover, Susan Phillips, Ozlem Uzuner)

The SUNY system has a particularly valuable set of data that SUNY faculty and providers use to deliver care to a large number of patients throughout New York State. These disparate data can be a critical resource for research, particularly if they can be combined and subsequently linked to other public health data and knowledge bases. A repository of this nature, due to its size and scope, has the possibility of being a key asset for SUNY educational programs and would position SUNY as a leader in health research.

The planning grant team has started to examine questions such as: what does SUNY-wide clinical data mean? One goal of the planning team is to understand this environment better and to start making connections across campuses. The meeting at CTG focused on envisioning an ideal repository, the technical, social, and political challenges in creating a repository, and the resources needed. Participants also identified additional stakeholders that need to be involved in the process of creating a roadmap.

The team also plans to document the existing electronic health record systems used by SUNY campuses. These types of inputs will be important for developing a comprehensive roadmap. The next stakeholder meeting will be held at SUNY Upstate sometime in November/December 2014.

PLANNING GRANT TEAM

  • Principal Investigator: Peter Winkelstein, MD, MBA, SUNY Buffalo, Executive Director, Institute for Healthcare Informatics
  • Werner Ceusters, MD, SUNY Buffalo, Director of Research, Institute for Healthcare Informatics
  • Peter L. Elkin, MD, SUNY Buffalo, Chair, Department of Biomedical Informatics
  • Natalie Helbig, PhD, SUNY Albany, Assistant Research Director, Center for Technology in Government
  • Peter Hojczyk, SUNY Buffalo, Senior Research Scientist, Institute for Healthcare Informatics
  • Christopher Morley, PhD, MA, SUNY Upstate, Vice Chair for Research, Family Medicine
  • John Epling, MD, MSEd, SUNY Upstate, Chair of Family Medicine
  • Yalini Senathirajah, PhD, SUNY Downstate, Assistant Professor
  • Saurabh Mehta, MBBS, ScD, Cornell University, Assistant Professor of Global Health, Epidemiology and Nutrition
  • Cheryl Markiewicz, SUNY Buffalo, Project Manager
  • Theresa Pardo, PhD, SUNY Albany, Director, Center for Technology in Government
  • Lisa Zander, SUNY Buffalo, Project Coordinator

Notes and meeting materials are in the process of being posted to a public site. In the meantime, if you would like access to the recording or the notes, please email nhelbig AT ctg.albany.edu.